HI,   (Priamary page for www.IamFightingCancer.com .)
I have PAROTID GLAND CANCER. It is in my left  facial cheek. The parotid gland is very valuable. It gives you saliva or you couldn't swallow food. The pain problems appeared originally as
Trigeminal Neuralgia,aka. Tic douloreaux  or  TN. In addition I have  Temporomadibular Joint aka TMJ
This page  was last updated   03/19/2006 06:21:45 -0600 By the time this cancer pain cure journal  is over this paragrapyh may turn into a small book. This journal helps to me remember what happened a year ago.  It is valuable to the doctors to know exactly what happened and when.  If you have significant pain and can't find the cause reading things like this on the internet is a good place to start. Other pain sufferers can help you discover the cause of your pain by publishing your story free on my website http://www.briannelsonconsulting.com/trigeminal-neuralgia-tn/patient-painful-stories.html and www.IamFightingCancer.com . A lot of people have written me how much they learned about their pain by reading  about the pain of others.  You can find this site again  by typing  the word "neuralgia" backwards, ie. "aiglaruen" in Google.Brian   Scan way down  past the ads.

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MTNSB My TN Story Include page.


Trigeminal Neuralgia , TN, tic douloreaux, is the trigeminal nerve producing  false signals from the brain sending excruciating lightening strikes of facial pain to one side of the face.  Treatment is by medication, radiosurgery, craniofacial surgery or neurosurgery  or Microvascular Decompression  (MVD) for nerve pain relief. Trigeminal Neuralgia typically is near the nose lips, eyes, or ears.
HI,   (Priamary page for www.IamFightingCancer.com .) Click Brian's TN Story Quick Load  Version No Graphics.  
I have PAROTID GLAND CANCER. It is in my left  facial cheek. The parotid gland is very valuable. It gives you saliva or you couldn't swallow food. The pain problems appeared originally as
Trigeminal Neuralgia,aka. Tic douloreaux  or  TN. In addition I have  Temporomadibular Joint aka TMJ
 By the time this cancer pain cure journal  is over this paragraph may turn into a small book. This journal helps to me remember what happened a year  or  two ago.  It is valuable to the doctors to know exactly what happened and when.  If you have significant pain and can't find the cause reading things like this on the internet is a good place to start. Other pain sufferers can help you discover the cause of your pain by publishing your story free on my website http://www.briannelsonconsulting.com/trigeminal-neuralgia-tn/patient-painful-stories.html and www.IamFightingCancer.com . A lot of people have written me how much they learned about their pain by reading  about the pain of others. 
You can find this site again  by typing  the word " neuralgia1 " backwards which is " 1aiglaruen " in Google.
Brian

Click Slide Show Draft for New TN Patients.   This page is originally at http://partytentcity.com/mytnstory.html


 You can see that some of my hair is growing back after 33 radiations and 3 Chemotherapy treatments. I am the one on the right. Not sure who the person is on the left but he makes me smile.    Brian Nelson,
Houston, TX 
Hi, I have put this  compendium  of data I have located to centralize on the internet about  Trigeminal Neuralgia aka tic douloreaux. It is  also known as TN. When I started this journal I did not know  that I had a cancerous malignant tumor (in my cheek) which is  giving me TN  similar symptoms.    In the beginning in  May 2004 I felt electrical cattle prod  like funny jolts and I also had  a  feeling of water trickling on the left side of my face.  I didn't say anything to anyone. I thought maybe it was stress related. I finally told my wife. She suggested I see the GP. He reviewed me and suggested an MRI. The MRi was negative for anything causing the pain.  He refered me to a neuraologist Dr. R. . You  are at section http://www.PartyTentCity.com/mytnstory.html a BWN  "Include Page04/05/2007 09:55 AM -0500
In July 2004 my dentist Dr. T.R. suggested the I look up trigeminal neuralgia. ......Bingo!  After reading the information about Trigeminal Neuralgia on the web I  felt I finally located something about a problem that had been puzzling me since May 2004. Dr. T.R. never had any TN patients. Fortunately he had been informed about dental patients who had pain very close to feeling like a dental problem but  which is  really caused by something else.  Reading about TN was depressing at first. It was also consoling in that I now felt  " I am  not alone" with these inside the head pains that on one including the doctor can see.Most importantly the jolts were NOT a figment of my imagination.

My main page is  now  www.IamFightingCancer.com

 Trigeminal neuralgia  is universally known as the most painful affliction know to medical practice. It is not fatal but the nature of it can be suicidal.  If you or a loved one has something similar to this disease share your feeling with others. Write something about it and send it  to me. I will publish your entire story free on my website www.IamFightingCancer.com  or   http://www.BrianNelsonConsulting.com/trigeminal-neuralgia-tn/patient-painful-stories.html  You can post your story at no charge. Send it to me by e-mail  

My first visit to a neurologist Dr.M. R. was in July 2004. A prescription for Flexerel was prescribed. After a week I determined that Flexerel may be the source of a very itchy rash on the right side of my neck. Sure enough. This muscle relaxer may be good for some people but it did not work for me. I stopped taking the medication and the rash went a way.

The next prescribed medication was given Neurontin.  On  9-13-04  my dosage was increased to 1800 mgs of Neurontin per day.  I didn't think the 1,800 mg was  doing me any good. Pains were still there. I called Dr.M. R. office to talk about  getting off of it.  Instead on 9-24-04 he suggested to increase the Neurontin  to 3,000 mg (5  600 mg pills / day). It still  did not seem to be doing any good. I continued to receive  significant jolts to the left side of my face. I decided  to taper off of Neurontin.  I could not  even get  advice on how to taper off  of the drug from the manufacturer or the DR.  so I could test something else.  I  decided to just tapered off the medication over a 2 week period. But, when I got totally off of it  my pain from jolts came in much stronger than before. I was wrong in thinking the Neurontin wasn't doing any good. I went back on 900-1200 Neurontin and the heaviness of the jolts decreased.

I had appointment  with Dr. G R is Oct. 6, 2004. As usual I had to  wait an hour.  I finally had to leave for another commitment without seeing Dr. G.R.  I  had been treated by Dr. G.R. since July  and my pain had not seem to be diminished. He would look at me and say I can't see anything bothering you so why don't you just experiment with these pills for me and see what happens. There was no data base to learn from or to supply information. It appears that this practice of medicine is just practicing and not super diagnostic in  getting to the root of the problem.  Since August of 2004 my neurologists were aware that the left side of my face was numb.   Drs. do not offer a guarantee on anything.  I  located neurologist Dr. J.K   Oct. 20, 2004. He had referred a MVD Patient to a Houston Neurosurgeon who successfully  performed the MVD. I later met her. She was a happy camper in the pain world. I  was then  put on 600 mg of Neurontin and  600 mg of Tegretol.  It  significantly reduced my electrical jabs and I finally got some decent sleep. I was so happy taking the Tegretol. October 28, 2004 I had a dental appointment  for a routine cleaning. I mentioned my TN problems as my jaw ached considerably. I could not open my mouth easily for the hygienist to clean my teeth. 

Dentist Dr. T.R. suggested  I considered us of a NTI device to prevent Bruxism, ie teeth grinding. It may be the cause of my very aching jaw pain which destroyed my will to focus very long on anything. I agreed that this program might  be a good one for me.   I have a theory that the thousands of electrical jabs in the middle of the night  may have overworked those poor 64 year old jaws causing me to tighten down on my teeth. Is that possible?  I purchased the TNI.  You can see a 6 minute video on it at www.HeadachePrevention.com  I think that the lower jaw seems to be much more relaxed and I could  open my mouth wider. The back part of the jaw still was aching pain which may be from getting used to the NTI device. I now have read on the web and heard from a Houston dentist  that the NTI device is a temporary . So how long should I use it? Then I lost the tiny NTI device  so the question of how long to use was taken care of by the man up stairs.


NTI Device

Based on my pain circulating from the top of  the left side of my head to the deep part of my throat Dr. K thinks  I have Atypical Facial Pain, ATFP . What is ATFP?. It is is a syndrome encompassing a wide group of facial pain problems.  The outlook seems  even worse than Trigeminal Neuralgia as some experts say that MVD surgery is NOT usually a successful option for ATFP. It is usually treated with medication. Darn! The rest of my life on pills?  You will find details about ATFP on website no. 4 of this compendium. If TN was a fatal disease it would be a whole lot easier to get research money.
I learned from the web about the Trigeminal Neuralgia Association  based in Florida.  Every 2 years they have a national conference. Rosemary and I attended
the TNA  Conference in Florida Nov 10-14, 2004  Dr. P.J.  said atypical facial pain may mean that that  there is more than one blood vessel compressing more than one nerve. You have to be  skilled in looking for it.  All should be corrected during the same time if one chooses an MVD procedure. Another Dr. TK.  states that he has never  seen more than one blood vessel causing a problem.  Now, who do I believe?

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